Challenge

The objectives were to explore our understanding of how individuals are impacted day-to-day by their breast cancer diagnosis; and the potential person-generated health data (PGHD) can have in allowing us to investigate ways to quantitatively measure QoL that are minimally burdensome and most valuable for patients, decreasing drop-off rates and deepening our understanding of real world outcomes.
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Solution

Within one week, Evidation was able to recruit 570 females from its connected app who have/had been diagnosed with breast cancer. A total of 24 females were currently undergoing treatment for their condition. The majority of the respondents reported having a current or previous diagnosis of breast cancer, are in remission, and are ~52 years old.
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Results

We asked “What is the impact of cancer on your life” and saw the main themes below. ~23% of individuals expressed a fear or concern of their cancer returning or of another impact on their life.
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Additionally, we asked “What is the main thing you wish your doctor/care team asked you about or took the time to understand about your illness and/or going through treatment” and saw several themes presented. 20% of individuals reported being content with their doctor’s care, but 14% desired more treatment knowledge.
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Of the 570 breast cancer participants, 67% indicated receiving drug therapies and 22% specified which drugs they previously used during their diagnosis. Of the 22% of participants who specified which drug/molecules they previously used, 15% are currently using drug therapies as a method of treatment.
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