Evidation Case Study | Uncovering opportunities to improve workplace equity with longitudinal RWD

We created a better picture of how conditions like endometriosis and uterine fibroids affect people's daily lives—including how these conditions impact people differently due to racial disparities – using survey responses and data from wearables.

Quick Facts

Fast Data Collection

~5 weeks to gather retrospective wearable and survey data from nearly 10,000 U.S. women

Diverse Population

35% White
31% Black
23% Hispanic or Latinx
9% Asian or Pacific Islander

Meaningful Insights

Continuous measurement revealed that those living with endometriosis and/or uterine fibroids (UF) tend to be less active than individuals living without
21% reported being unable to complete daily tasks during every menstrual cycle, adding up to approximately 3 months of the year

A quote that reads "Evidation was a valuable partner in measuring and characterizing the outsized impact that conditions like endometriosis and uterine fibroids have on work and school life. By connecting directly with individuals to understand their lived experiences, Evidation helped advance employers' goals of improving equity for individuals suffering from these conditions." this quote is from Kalahn Taylor Clark, Faculty in Executive Education, Carey Business School at John Hopkins University

Challenge

Endometriosis and UF are common and serious health problems, but a lack of real-world evidence about the experience of living with these diseases has limited our understanding and development of interventions that could improve lives
Evidation's unique ability to connect with individuals outside the clinical setting matched Myovant's commitment to gaining a thorough understanding of the day-to-day experiences of people living with endometriosis and/or UF
With the goal of raising awareness, Myovant approached Evidation with two main objectives:
- Explore the lived experiences of individuals with endometriosis and/or UF
- Compare how racial differences affect individuals’ disease burden

Approach

In October 2022, Evidation and Myovant co-designed a survey that received responses from a racially diverse population of nearly 10,000 Evidation members to examine their experiences with endometriosis and uterine fibroids
In addition to the survey, Evidation also analyzed permissioned wearable data on physical activity, sleep, and resting heart rate over a 12-month period
The project kicked off quickly, with just 5 weeks between the launch of the survey and the delivery of the results

Endometriosis and uterine fibroids substantially impact both quality of life and physical mobility—and disproportionately affect individuals across racial groups.

This reality is clearly shown through our survey results and wearable data.

A chart showcasing individuals diagnosed with endometriosis and/or uterine fibroids and their likelihood to miss work, not be able to complete daily tasks, and having extreme symptoms that impact work or school-related stress

Impact

With these findings, Myovant highlighted the need for more research and resources for menstruating people
Myovant helped spotlight the importance of workplace and school accommodations for their individuals with these conditions
This partnership ultimately helped menstruating people – particularly those living with endometriosis and/or UF – know they are not alone. Menstrual champion programs like period.org and the Fibroid Foundation's Workplace Reset are dedicated to improving outcomes for all who menstruate, including those suffering from these conditions.

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